Hi, I'm a 55 yo female who has been diagnosed with Interstitial Cystitis, and adhesions on hysterectomy scar since 2009, mind you the hysterectomy was in '94. More recently, I have been diagnosed with peripheral neuropathy as well. After finding your site, I think that PN might make more sense. My UTI-like symptoms are brought on by sitting, and will last for long periods of time. If I spend no time sitting all of the symptoms disappear. My question is do any of you have peripheral neuropathy (stabbing/electrical/numbness in feet) as well?
Thanks in advance for your advice! I really appreciate your site, this has been a frustrating/depressing path....but I think you already know this. Thanks again, Karen
Newbie with questions
Re: Newbie with questions
Hello Karen,
Welcome to the forum.
Yes, I've had numbness and tingling in my feet although I'm not sure all of it is all related to pudendal neuralgia. When pain levels are high it can cause muscles in the pelvis, such as the piriformis, to go into spasm and put pressure on the sciatic nerve and cause sciatica-type symptoms including foot numbness. I experienced that but I also have burning and tingling in my feet after walking a couple of miles that's different from sciatic pain and seems more like local peripheral neuropathy. So, I'm not sure what is causing your foot neuropathy but those are some possibilities.
I'm glad you found our site and hope you find some answers here.
Best,
Violet M
Welcome to the forum.
Yes, I've had numbness and tingling in my feet although I'm not sure all of it is all related to pudendal neuralgia. When pain levels are high it can cause muscles in the pelvis, such as the piriformis, to go into spasm and put pressure on the sciatic nerve and cause sciatica-type symptoms including foot numbness. I experienced that but I also have burning and tingling in my feet after walking a couple of miles that's different from sciatic pain and seems more like local peripheral neuropathy. So, I'm not sure what is causing your foot neuropathy but those are some possibilities.
I'm glad you found our site and hope you find some answers here.
Best,
Violet M
PNE since 2002. Started from weightlifting. PNE surgery from Dr. Bautrant, Oct 2004. Pain now is usually a 0 and I can sit for hours on certain chairs. No longer take medication for PNE. Can work full time and do "The Firm" exercise program. 99% cured from PGAD. PNE surgery was right for me but it might not be for you. Do your research.
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helenlegs 11
- Posts: 1779
- Joined: Fri Sep 17, 2010 9:39 am
- Location: North East England
Re: Newbie with questions
I can totally relate to your post Karen, OOps should say Welcome first 
. . . . .
I remember when I didn't have a clue about pelvic neuropathy and had done some internet research and reading, I came up with peripheral neuropathy as a possible answer to all of my symptoms. I related this to my GP who replied, "if you had peripheral neuropathy you would definitely know about it!", I thought I KNOW, it's you who doesn't get the degree of my problems here!!
Anyway, like you I have the burning feet and almost complete numbness in the soles and outside of my feet (big toes not so bad).
If I walk a few steps I get a bit more painful than pins and needles 'flushing' through the soles when I stop walking. I put this down to sciatica as I have some pelvic nerves trapped at piriformis level.
There are quite a few people who have foot problems as well as pudendal neuralgia. I'm not 100% sure if they also have other sciatica and associated leg problems or just pudendal and foot ?? Maybe that is a good question to ask on this site just in general.
I know mine is the full sciatica, although I don't have that much calf pain tbh.
The other explanation for having pudendal (genital) pain and sciatic (foot) pain together is that the two separate body areas are located beside each other in the brain http://4.bp.blogspot.com/_IA5nokOFh84/S ... medial.jpg
This may explain things if someone has PN and foot pain too.
Hope you get answers to your questions here, do you have any piriformis symptoms at all?
TAKE CARE.
HELEN
. . . . .I remember when I didn't have a clue about pelvic neuropathy and had done some internet research and reading, I came up with peripheral neuropathy as a possible answer to all of my symptoms. I related this to my GP who replied, "if you had peripheral neuropathy you would definitely know about it!", I thought I KNOW, it's you who doesn't get the degree of my problems here!!
Anyway, like you I have the burning feet and almost complete numbness in the soles and outside of my feet (big toes not so bad).
If I walk a few steps I get a bit more painful than pins and needles 'flushing' through the soles when I stop walking. I put this down to sciatica as I have some pelvic nerves trapped at piriformis level.
There are quite a few people who have foot problems as well as pudendal neuralgia. I'm not 100% sure if they also have other sciatica and associated leg problems or just pudendal and foot ?? Maybe that is a good question to ask on this site just in general.
I know mine is the full sciatica, although I don't have that much calf pain tbh.
The other explanation for having pudendal (genital) pain and sciatic (foot) pain together is that the two separate body areas are located beside each other in the brain http://4.bp.blogspot.com/_IA5nokOFh84/S ... medial.jpg
This may explain things if someone has PN and foot pain too.
Hope you get answers to your questions here, do you have any piriformis symptoms at all?
TAKE CARE.
HELEN
Fall 2008. Misdiagnosed with lumber spine problem. MRN June 2010 indicated pudendal entrapment at Alcocks canal. Diagnosed with complex variant piriformis syndrome with sciatic, pudendal and gluteal entrapment's by Dr Filler 2010.Guided piriformis botox injection 2011 Bristol. 2013, Nerve conduction test positive; new spinal MRI scan negative, so diagnosed for the 4th time with pelvic nerve entrapment, now recognised as Sciatic, pudendal, PFCN and cluneal nerves at piriformis level.